11. The Shepherd Center (Atlanta, GA) 12. The Mississippi Coalition for Citizens with Disabilities and Living Independence For Everyone (LIFE) 18. Friends of Disabled Adults and Children (Georgia) 22. Polio Survivors Association - www.polio-association.org 27. Greater Boston Chapter, National Spinal Cord Injury Association 31. The Muscular Dystrophy Association (MDA) 32. The National Spinal Cord Injury Association 35. Ride for Life (A Leading ALS Advocacy Group) 36. Volar Center for Independent Living, 8929 Viscount, Suite 101, El Paso, Texas 79925 38. The National Association for Homecare (NAHC) 39. Disabled Action Committee (DAC) 40. National Council on Independent Living NCIL -- Not Just Responding to Change, But Leading It! 41. Disability Resourses Agency for Independent Living (DRAIL) 42. American Association of Homecare (AAH) Endorses NCAHB 43. Les Turner ALS Foundation Endorses NCAHB 44. Self-Reliance, Inc. Hello! To read NCAHB endorsements 1-10 please scroll down this page: (Endorsements 11 and upward are on separate pages) ========================================================= 1. International Ventilator Users Network (IVUN) 4207 Lindell Blvd., #110, St. Louis MO 63108-2915 USA 314.534.0475 · 314.534.5070 fax gini_intl@msn.com · www.post-polio.org/ivun.html 15 February 2001 National Coalition to Amend the Medicare Homebound Restriction for Severely Disabled Americans To Whom It May Concern: The International Ventilator Users Network (IVUN) is a worldwide network of ventilator users, respiratory health professionals, and ventilator equipment and aids manufacturers and vendors. Our network promotes home care of long-term ventilator users. IVUN's objective is to foster a positive image of ventilators and to de-mystify their use. Long-term ventilator use at home is safe and cost-efficient, compared to institutional placement. Continued advances in ventilator enable more and more ventilator users to increase their independence and quality of life. IVUN supports the coalition's work in abolishing an obsolete restriction that fails to look at the broader picture of what it means to live at home long-term with a ventilator. It unnecessarily and unjustly penalizes an individual with a chronic health care need. IVUN urges its members to individually sign the coalition's petition and to advocate for its support. Sincerely, Joan L. Headley, Executive Director GINI Judith R. Fischer, Editor IVUN News Coordinated by Gazette International Networking Institute (GINI) Publisher of IVUN News, Polio Network News, and Rehabilitation Gazette ====================================================== 2. The World Association of People with disAbilities Subj: Hello "George"! Date: 02/15/2001 6:37:30 PM Eastern Standard Time From: ceo@wapd.org (George B. Kerford) To: DJayne23@aol.com Dear David, Yes you are "George"! Do you have an address for those that wish to send regular signatures via snail mail? I hope we can make this a shot that's heard around the world! World Association of Persons with disAbilities [WAPD] is behind you all the way and should you need to use our name in support your effort please feel free to do so. Saludos, gbk ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ George Byron Kerford, Ph.D., Chairman/Chief Exec. Officer World Association of Persons with disAbilities [WAPD] http://www.wapd.org Mailto:ceo@wapd.org Tel. 888.288.4909 Fax. 405.672.4441 P.O. Box 14111 Oklahoma City, Oklahoma 73113 Beacon of Knowledge & Refuge for World's Largest Minority ========================= 3. The Georgia Advocacy Office Tuesday, February 20, 2001 The Georgia Advocacy Office, Georgia's Protection and Advocacy System supports the Coalition's efforts to amend the Medicare restriction on homebound services, so that people who need long-term supports can stay in their homes, rather than be forced into large congregate settings. Our communities and neighborhoods will be enriched by this change in policy. Joyce Ringer, Ph.D. Executive Director ============================== 4. Subj: AAPD Endorsement of Your Petition Date: 02/20/2001 8:58:03 AM Eastern Standard Time From: <A HREF="mailto:ImparatoA">ImparatoA</A> To: <A HREF="mailto:AbolishHomebound">AbolishHomebound</A> CC: <A HREF="mailto:mark_johnson@shepherd.org">mark_johnson@shepherd.org David, Mark Johnson alerted me to your petition and coalition regarding the Medicare homebound policy. I personally signed the petition this morning. I am writing to let you know that the American Association of People with Disabilities, a national membership organization for children and adults with disabilities, their family members and supporters, may be listed as a supporting organization of your efforts. Our mission is political and economic empowerment for the more than 56 million children and adults with disabilities in the U.S., and we see Medicare's homebound policy as inconsistent with our mission and inconsistent with the goals of the Americans with Disabilities Act, which include FULL PARTICIPATION and EQUALITY OF OPPORTUNITY. We are going to encourage our 25,000 members to sign your petition in our newsletter that will be coming out in a couple of weeks. Best of luck with your efforts and please let me know how I or AAPD can be helpful. Andrew J. Imparato President and CEO American Association of People with Disabilities 1819 H Street, N.W., Suite 330 Washington, DC 20006 800 840-8844 202 457-0046 202 457-0473 (fax) imparatoa@aol.com ====================== 5. Monroe County Womens' Disability Network Dear NCAHB Group: I am writing on behalf of the Monroe County Women's Disability Network to support your efforts to pass this legislation. I am in Louise Slaughter's district. Catherine Alfieri Pittsford, NY Monroe County Women's Disability Network mcwdn@rochester.rr.com http://www.mcwdn.org VirtEd http://www.mcwdn.org/VirtEd2.html Personal page http://www.mcwdn.org/AlfieriMain.html "See with your heart, Speak with your heart!" ========================= 6. Justice for All Justice For All jfa@jfanow.org February 2001 To: National Coalition to Amend the Medicare Homebound Restriction for Severely Disabled Americans. Free Our People: We strongly support efforts to amend title XVIII of the Social Security Act to clarify the definition of homebound with respect to home health services under the Medicare Program so that people who need long-term supports can live in their communities. Justice For All is a national advocacy whose mission is to defend and advance disability rights and programs. JFA was founded in January of 1995 by Justin Dart, Becky Ogle, Fred Fay, Mark Smith and others. We urge JFA advocates to individually sign the coalition's petition and to advocate for its support. Lead on! -- Fred Fay Chair, Justice For All jfa@jfanow.org http://www.jfanow.org ================================== 7. Georgia ALS Association << Subj: Petition to Abolish Homebound Restriction Date: 03/11/2001 7:50:45 PM Eastern Standard Time From: tpaatl@mindspring.com (Sharon Hulme) To: DJayne23@aol.com (David Jayne) CC: susan@constantine.com (Susan Constantine) David, Just wanted to let you know that your petition was signed today by the Board of Trustees of the ALS Association of Georgia. Please allow me to thank you again for your courage and fortitude, and for bringing this issue to the attention of our federal government in the hope of gaining a desperately needed improvement in the Medicare laws, not just for PALS but for people suffering from disabilities of all kinds. You're one in a billion, David, and are a beacon and inspiration to PALS, CALS, and all others who care about the cause of ALS! God bless you, Sharon Hulme President ALSA of Georgia >> =================================== 8. PALS 201 N. Damascus Church Road, Hartsville, South Carolina 29550 Telephone: 843 332-7252 Ext.120 Fax: 843-332-0609 E-mail: scpal@bellsouth.net March 7,2001 Dear Friends, I want to send a letter of endorsement and support for David Jayne and the National Coalition to Amend the Medicare Homebound Restriction for Americans with Significant Chronic Illness. It is a subject very dear to my heart. I went through 11 years of home health services. Fortunately, my nurses understood the necessity for the severely ill and disabled to have time out of the house. That time away to do "normal" things and have a respite away from the reality of our illnesses does wonders for our ability to cope with what is going on in our bodies and minds as we face life- threatening circumstances. All persons with debilitating diseases need to feel their lives are still important and that they still have something to contribute to society. All people are going to have to face disease and death. Learning how to cope drawing on experiences from those who have been there helps individuals facing their own problems. Let the people out to speak in churches, civic groups, and support groups. Let parents out to watch their children grow. Life is difficult enough on the children of the chronically ill. They need to know their parents are there for them even though they are ill. The ill should be allowed to go to church when they feel strong enough to go. They need the fellowship, prayers and help of the believers. It is when one is ill that they draw on the strength of the Lord and others. They will not be physically able to endure hours and hours of time away from home but we should be allowed to leave the house occasionally and not lose our health care. Please call your congressmen and women and ask them to support this bill. Respectfully, Nancy W. Caffee Director P.A.L.S./People Always Lending Support Visit our website: http//www.palscentral.org ======================================= 9. Subj: Endorsement Date: 03/14/2001 8:56:57 PM Eastern Standard Time From: silcga@mindspring.com (Pat Puckett) To: djayne23@aol.com You can add the Statewide Independent Living Council of GA, Inc. to the list of endorsing organizations. ================================================= 10. Please sign on the Association of Tech Act Projects. There are Tech Act Projects in each of the 50 states and 6 territories. These programs are designed to ensure access to assistive technology devices and services for people with disabilities. The majority of these programs are members of the Association of Tech Act Projects. Ronna Linroth Executive Board Member on behalf of the Association of Tech Act Projects. All things are possible until they are proved impossible - and even the impossible may only be so, as of now. - Pearl S. Buck (1892-1973) American writer and humanitarian C |
The National Coalition to Amend the Medicare Homebound Restriction for Americans with Significant Illness |
11. The Shepherd Center (Atlanta, GA) 12. The Mississippi Coalition for Citizens with Disabilities and Living Independence For Everyone (LIFE) 18. Friends of Disabled Adults and Children (Georgia) 22. Polio Survivors Association - www.polio-association.org 27. Greater Boston Chapter, National Spinal Cord Injury Association 31. The Muscular Dystrophy Association (MDA) 32. The National Spinal Cord Injury Association 35. Ride for Life (A Leading ALS Advocacy Group) 36. Volar Center for Independent Living, 8929 Viscount, Suite 101, El Paso, Texas 79925 38. The National Association for Homecare (NAHC) 39. Disabled Action Committee (DAC) 40. National Council on Independent Living NCIL -- Not Just Responding to Change, But Leading It! 41. Disability Resourses Agency for Independent Living (DRAIL) 42. American Association of Homecare (AAH) Endorses NCAHB 43. Les Turner ALS Foundation Endorses NCAHB 44. Self-Reliance, Inc. Hello! To read NCAHB endorsements 1-10 please scroll down this page: (Endorsements 11 and upward are on separate pages) ========================================================= 1. International Ventilator Users Network (IVUN) 4207 Lindell Blvd., #110, St. Louis MO 63108-2915 USA 314.534.0475 · 314.534.5070 fax gini_intl@msn.com · www.post-polio.org/ivun.html 15 February 2001 National Coalition to Amend the Medicare Homebound Restriction for Severely Disabled Americans To Whom It May Concern: The International Ventilator Users Network (IVUN) is a worldwide network of ventilator users, respiratory health professionals, and ventilator equipment and aids manufacturers and vendors. Our network promotes home care of long-term ventilator users. IVUN's objective is to foster a positive image of ventilators and to de-mystify their use. Long-term ventilator use at home is safe and cost-efficient, compared to institutional placement. Continued advances in ventilator enable more and more ventilator users to increase their independence and quality of life. IVUN supports the coalition's work in abolishing an obsolete restriction that fails to look at the broader picture of what it means to live at home long-term with a ventilator. It unnecessarily and unjustly penalizes an individual with a chronic health care need. IVUN urges its members to individually sign the coalition's petition and to advocate for its support. Sincerely, Joan L. Headley, Executive Director GINI Judith R. Fischer, Editor IVUN News Coordinated by Gazette International Networking Institute (GINI) Publisher of IVUN News, Polio Network News, and Rehabilitation Gazette ====================================================== 2. The World Association of People with disAbilities Subj: Hello "George"! Date: 02/15/2001 6:37:30 PM Eastern Standard Time From: ceo@wapd.org (George B. Kerford) To: DJayne23@aol.com Dear David, Yes you are "George"! Do you have an address for those that wish to send regular signatures via snail mail? I hope we can make this a shot that's heard around the world! World Association of Persons with disAbilities [WAPD] is behind you all the way and should you need to use our name in support your effort please feel free to do so. Saludos, gbk ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ George Byron Kerford, Ph.D., Chairman/Chief Exec. Officer World Association of Persons with disAbilities [WAPD] http://www.wapd.org Mailto:ceo@wapd.org Tel. 888.288.4909 Fax. 405.672.4441 P.O. Box 14111 Oklahoma City, Oklahoma 73113 Beacon of Knowledge & Refuge for World's Largest Minority ========================= 3. The Georgia Advocacy Office Tuesday, February 20, 2001 The Georgia Advocacy Office, Georgia's Protection and Advocacy System supports the Coalition's efforts to amend the Medicare restriction on homebound services, so that people who need long-term supports can stay in their homes, rather than be forced into large congregate settings. Our communities and neighborhoods will be enriched by this change in policy. Joyce Ringer, Ph.D. Executive Director ============================== 4. Subj: AAPD Endorsement of Your Petition Date: 02/20/2001 8:58:03 AM Eastern Standard Time From: <A HREF="mailto:ImparatoA">ImparatoA</A> To: <A HREF="mailto:AbolishHomebound">AbolishHomebound</A> CC: <A HREF="mailto:mark_johnson@shepherd.org">mark_johnson@shepherd.org David, Mark Johnson alerted me to your petition and coalition regarding the Medicare homebound policy. I personally signed the petition this morning. I am writing to let you know that the American Association of People with Disabilities, a national membership organization for children and adults with disabilities, their family members and supporters, may be listed as a supporting organization of your efforts. Our mission is political and economic empowerment for the more than 56 million children and adults with disabilities in the U.S., and we see Medicare's homebound policy as inconsistent with our mission and inconsistent with the goals of the Americans with Disabilities Act, which include FULL PARTICIPATION and EQUALITY OF OPPORTUNITY. We are going to encourage our 25,000 members to sign your petition in our newsletter that will be coming out in a couple of weeks. Best of luck with your efforts and please let me know how I or AAPD can be helpful. Andrew J. Imparato President and CEO American Association of People with Disabilities 1819 H Street, N.W., Suite 330 Washington, DC 20006 800 840-8844 202 457-0046 202 457-0473 (fax) imparatoa@aol.com ====================== 5. Monroe County Womens' Disability Network Dear NCAHB Group: I am writing on behalf of the Monroe County Women's Disability Network to support your efforts to pass this legislation. I am in Louise Slaughter's district. Catherine Alfieri Pittsford, NY Monroe County Women's Disability Network mcwdn@rochester.rr.com http://www.mcwdn.org VirtEd http://www.mcwdn.org/VirtEd2.html Personal page http://www.mcwdn.org/AlfieriMain.html "See with your heart, Speak with your heart!" ========================= 6. Justice for All Justice For All jfa@jfanow.org February 2001 To: National Coalition to Amend the Medicare Homebound Restriction for Severely Disabled Americans. Free Our People: We strongly support efforts to amend title XVIII of the Social Security Act to clarify the definition of homebound with respect to home health services under the Medicare Program so that people who need long-term supports can live in their communities. Justice For All is a national advocacy whose mission is to defend and advance disability rights and programs. JFA was founded in January of 1995 by Justin Dart, Becky Ogle, Fred Fay, Mark Smith and others. We urge JFA advocates to individually sign the coalition's petition and to advocate for its support. Lead on! -- Fred Fay Chair, Justice For All jfa@jfanow.org http://www.jfanow.org ================================== 7. Georgia ALS Association << Subj: Petition to Abolish Homebound Restriction Date: 03/11/2001 7:50:45 PM Eastern Standard Time From: tpaatl@mindspring.com (Sharon Hulme) To: DJayne23@aol.com (David Jayne) CC: susan@constantine.com (Susan Constantine) David, Just wanted to let you know that your petition was signed today by the Board of Trustees of the ALS Association of Georgia. Please allow me to thank you again for your courage and fortitude, and for bringing this issue to the attention of our federal government in the hope of gaining a desperately needed improvement in the Medicare laws, not just for PALS but for people suffering from disabilities of all kinds. You're one in a billion, David, and are a beacon and inspiration to PALS, CALS, and all others who care about the cause of ALS! God bless you, Sharon Hulme President ALSA of Georgia >> =================================== 8. PALS 201 N. Damascus Church Road, Hartsville, South Carolina 29550 Telephone: 843 332-7252 Ext.120 Fax: 843-332-0609 E-mail: scpal@bellsouth.net March 7,2001 Dear Friends, I want to send a letter of endorsement and support for David Jayne and the National Coalition to Amend the Medicare Homebound Restriction for Americans with Significant Chronic Illness. It is a subject very dear to my heart. I went through 11 years of home health services. Fortunately, my nurses understood the necessity for the severely ill and disabled to have time out of the house. That time away to do "normal" things and have a respite away from the reality of our illnesses does wonders for our ability to cope with what is going on in our bodies and minds as we face life- threatening circumstances. All persons with debilitating diseases need to feel their lives are still important and that they still have something to contribute to society. All people are going to have to face disease and death. Learning how to cope drawing on experiences from those who have been there helps individuals facing their own problems. Let the people out to speak in churches, civic groups, and support groups. Let parents out to watch their children grow. Life is difficult enough on the children of the chronically ill. They need to know their parents are there for them even though they are ill. The ill should be allowed to go to church when they feel strong enough to go. They need the fellowship, prayers and help of the believers. It is when one is ill that they draw on the strength of the Lord and others. They will not be physically able to endure hours and hours of time away from home but we should be allowed to leave the house occasionally and not lose our health care. Please call your congressmen and women and ask them to support this bill. Respectfully, Nancy W. Caffee Director P.A.L.S./People Always Lending Support Visit our website: http//www.palscentral.org ======================================= 9. Subj: Endorsement Date: 03/14/2001 8:56:57 PM Eastern Standard Time From: silcga@mindspring.com (Pat Puckett) To: djayne23@aol.com You can add the Statewide Independent Living Council of GA, Inc. to the list of endorsing organizations. ================================================= 10. Please sign on the Association of Tech Act Projects. There are Tech Act Projects in each of the 50 states and 6 territories. These programs are designed to ensure access to assistive technology devices and services for people with disabilities. The majority of these programs are members of the Association of Tech Act Projects. Ronna Linroth Executive Board Member on behalf of the Association of Tech Act Projects. All things are possible until they are proved impossible - and even the impossible may only be so, as of now. - Pearl S. Buck (1892-1973) American writer and humanitarian C |
